We spent the day up at the hospital. When our daughters blood counts came back yesterday her hematicrit was down to 20 which means she needed to get a blood transfusion. Today we took her to have her transfusion. She did just fine with the blood she recieved and she should have more energy and feel better tomorrow (actually she looked quite good shortly after she was done with the transfusion). She has had two transfusions prior to this one. Both of the others were done while we were in the hospital for her treatments. It is nice to have it done when we are already up at the hospital, instead of coming back up a separate time. She was also visited by Kyle Korvor from the Utah Jazz and he signed a little Jazz basketball for her (I think her brother will like the basketball better than her though). I think it would have been more exciting for her if she was older. She just couldn't figure out why all of those people were staring at her. She didn't even want to touch the basketball until long after they left. Oh, well it was a nice thought (and good PR for the Jazz). I was surprised to see how long it took to have her transfusion done today. I think part of the reason it took so long, was that her baroviac line is not wanting to draw back blood again. The nurse tried to draw back blood for twenty minutes (which really wasn't that long considering our home healthcare nurse and I tried for one hour yesterday. Everyone that tries to flush the line (push fluids through it) says that her line flushes beautifully, and then when they try to draw back they can't figure out what is wrong with it. The nurse TPAed her line which is putting a declotting agent in her line, then it sat in her line for 1 hour and 45 min. Then she tried to draw back a clot, but nothing came back (There was No Clot). Her Oncologists decided it isn't worth trying to replace it right now. So we will fight with her broviac for a little longer. If it continues to have problems drawing back they will start doing blood draws with a needle. I hope the line decides to work for us again.We are so grateful for all of the many people who are able and willing to give blood for those who need it.
5 comments:
I have followed your story about your little daughter since almost the very start, but I have not yet seen you post what state you are in. After reading this post, I am assuming that you are in Utah since a Utah Jazz player came to the hospital to visit your daughter. IF you don't mind, would you please let me know where you are for sure..... just out of my curiousity.... not to threaten you at all... I promise
We were just watching the news tonight and they showed the Jazz players visiting all of the kids at PMC - I quickly thought of you guys and figured that you missed the "big event!" I'm sorry to hear that you actually didn't - that's no fun that you had to have an extra trip to the hospital. Great to hear that all went well for her with the transfusion. What a tough little girl you have to go through all of this!
To our Sweet Family, Glad the baby is doing okay, and I'm certain the blood will help her feel more energetic! We'll continue to pray that her line will work so she won't have to have those needle sticks. Give her a big hug for us! Love and miss you all. Gr and Gr R
I am so sorry that the broviac (sp?) line won't work for you. I hope you don't have to draw blood with needles, poor girl! That is neat about the Utah Jazz visiting? How did Mike respond? It is good that they do the PR work. Kind of brightens their day.
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