Tuesday, January 6, 2009

Just A Small Update


Our little one is doing well. She has finally stopped throwing up. It seems that this time post-treatment she threw up more than before. I don't know why, but I wonder if it has something to do with the fact that she started her last round of Chemotherapy with a cold and her system was already run down. She has had her blood drawn three times since we came home. Her levels should be at their low right now, but they are actually pretty good. They're a little low, but not enough to need a blood transfusion. Her ANC is up high enough that we were able to give her her last Neupogen shot last night, HOORAY! She will be glad to be done with her shots, I think she has finally caught on to what happens when we take the syringe and needle out of the package. She starts to wiggle, hold her legs and fuss. Hopefully this won't have lasting effects on her for shots she will need in the future. We have noticed that her appetite is coming back. Not back to normal, but she is eating three small meals a day. This is good since she usually will eat only one good meal a day and pick at her food the other two meals. It also takes her almost two and a half weeks before she actually eats three meals again. Her energy level seems to be back as well. We feel really good about her progress. Our other children keep asking us when their sister is going to be better, since we don't know for sure, we just keep telling them that when her Broviac tube is removed then she will be better. Now every time they say their prayers we hear, "Please bless Alyssa to get her tube out so she can be better." I guess we need to explain it a little different so they don't think that the tube is the thing that is making her sick. Our oldest daughter understands but I am not so sure about the middle two children. Speaking of prayers, we are so thankful for all of the prayers being said for our family. We know that we are being very blessed because of the faith and prayers of all of our friends and family, Thank You!

6 comments:

Mary said...

Sara, I know that I'm just getting to know you but I wanted to let you know that I think you are an amazing mother. Your children are lucky to have you. Our prayers are with your little girl and all of your family.

Doug and Carol Ann said...

We ditto a thank you to everyone who has prayed, fasted, and helped out this wonderful family. Their goodness is exemplified in every journal entry. We know great blessings are coming during this trial. We hope the baby continues to do well, and this month will bring good news. Love you all, Gr & Gr R

Jennifer said...
This comment has been removed by the author.
Jennifer said...

It's hard to explain it to the sibs, isn't it? Our 10 year old is just ticked that brother gets to take the video games with him to the hospital (like it's some honor to be there or something). My four year old daughter recently said, "I have a bad cold, Mom has a headache, and Jacob has cancer." It was just so matter of fact as if they were all on the same playing field.

I don't think I gave you my son's medical blog. You can go to JJlovesJACOB dot blogspot dot com if you want to check it out.

(Sorry had to delete last post because I put blog address in wrong - OOPS)

Rachael said...

Hello Sara and family. Appreciate the blog and just wanted to let you know that we continue to pray for little Alyssa and your family everynight. We love you,
Rachael

Angie said...

It is so good to hear that she has her appetite back, even if it is just slightly. Adios Neupogen!!!!