Tuesday, December 2, 2008

A Little Scare


Our babies counts were up, and we made it to the hospital on Monday. We found out that our daughter is allergic to one of the chemo drugs that they have been giving her. The Doctor said that it isn't uncommon for people to build up an allergy over time. We noticed that when she has been given Etoposide (VP-16) that she gets really itchy. Her tongue starts to bother her and her eyes and face itch. Last time they noticed an increase in her heart rate as well. This time, after about 15minutes of having Etoposide she started rubbing her eyes and rolling her tongue like she usually does, but then she started to throw up. The lights were dim, and I was in clean up mode and my husband had throw up on him, so he was holding our baby with a blue chuck (to protect him from getting more throw up on him). I got her cleaned up the Tech came in and said I am going to get the nurse to tell her she is throwing up. Apparently it is not very common to throw up so soon after starting chemo (it usually happens a little later on). While she was out getting the nurse our baby began to get sleepy and she fell asleep. When the nurse came in she touched our daughter and said get her up on the table we have to get oxygen in her right now. My husband took her over to her bed and we realized that she was white and that her mouth was blue. The nurse got some oxygen on her and immediately turn off and disconnected the drip line full of etopiside. The tech went and brought in the nurse practicioner and the charge nurse for the night. Once everyone was in the room and the bright lights were on she started crying pretty hard and got some good oxygen in her system. She began to be more responsive and she started to pink up. She didn't need to be revived, she started breathing again on her own once we moved her over to her bed. What my husband and I didn't recognize in the dim lights of our room, was that she was not falling asleep, but that she had stopped breathing. The nurse wondered if we hadn't noticed the temperature of her skin was cold and that she was unresponsive and limp. In our defense: It is not uncommon to have her fall asleep when they give her the etoposide, The room was dim and she had a pacifier in her mouth, there was also a plastic protective cover between her and her dad. The nurses put the fear in you about getting cleaned up if you get the chemo on you (one nurse said they treat it like a hazardous waste spill), so when her diaper leaks or she throws up they make us clean her off a 2-3 times and anything she is wearing needs to be changed. We have to do the same if it gets on us, so we were focused on getting her, the room and us cleaned up. When we thought she was falling asleep it didn't seem to out of the ordinary. Now, we know what to look for if this happens again, and we will be watching more closely. All of this happened quite quickly within a total of 5 min or less. She is doing fine. Her rounds of Bleomycin and Cisplatin chemo went just fine last night. The Oncologist decided to give her a different drug called Etopophos instead. This drug does the same thing in her therapy that the etoposide does, but less people have a reaction to it. They will give it to her over several hours rather than the usual 1-1/2 hours and we will all watch her very closely to make sure that she doesn't have an allergic reaction to it. Again, thank you to everyone that keeps her in your thoughts and prayers.

8 comments:

Marisa said...

That is so scary--glad they caught it in time and revived her. It's good you know what to watch for now. We are still thinking of you and praying for you.

miss patti said...

Wow! How scary is that. I'm so glad that she made it through that alright. You guys are amazing. My family and I will continue to pray for all of you.

okerlund family said...

I talked to Julie last night and she told me of this little incident, and of course it felt like my heart had stopped for a few moments--probably just like yours did and everyone else's does as they read about this. I'm sure Mike felt pretty bad--no fault of his. I guess this just shows us once again how fragile their little bodies and spirits are and how much our little ones need constant care, heavenly intervention, and unfortunately medical interventions at times too. We are praying for each of you, and hope these next couple of nights in the hospital are less hectic and scary. You are both so amazingly strong--it's o.k. to break down and I'm sure you have those moments where none of us will ever know about. We love you. Love, mary

mich said...

Oh Sara.. that is so Scary! I am sorry you guys have to go through this let alone that! I am glad the nurse was on top of it. You guys just hang in there. Of course you don't know what to expect so don't feel bad. That is good that they are taking extra precatutions with her. We will be praying for All of you . Stay positive!

The Johnsons said...

How frightening for you, thank goodness everything turned out ok. Gosh, it probably feels like you can never let your guard down for a second.
We're still praying, and thinking of you.

jbbastian said...

I'm so glad to hear that she is dong so well. You seem to be hadling this all in stride -- hang in there. Chemo is awful but it really does work. Our prayers are with you!!

Angie said...

I am so sorry that happened! I am sure it has been a very scary experience. Atleast you can "dance" to the fact that she won't have to take that medicine again.

Janae B said...

Those things can happen even under our noses and that is when we realize the intervention and the blessings of Heaven, and the guardian angels. I can't believe how much you have had to learn through all this. You are so blessed to have so many professionals helping you. We constantly pray for you all.